TUESDAY 18TH FEBRUARY 2003
NEEDS
AND REQUIREMENTS
-
How far would 'you' go with your body?
- Three
rights you would like to retain around your body?
What
follows are the answers from each of the participants:
-
Full brain and genetic augmentation (tested/safe)
-
Own DNA code that makes me unique
-
Determine genetic future of me
-
Prohibit use of information from DNA for discrimination
-
Determine where I was at medically and right now not anywhere
-
Privacy (surveillance)
-
Privacy (genetic fingerprint)
-
Contextual, time limited, affords pleasure and is consensual -
three parameters
-
Subject of own research
-
Fear
-
Right to decide what substances consume
-
When I am harvested
-
Not to be tortured
-
Not to be asked to hurt another person
-
Social negotiation of rights, collectively negotiated consent
and rights
-
Dependant of where I was / what on menu - collective causality
for example, choice
-
Issue of rights - no diffusion - take all away - open source -
sharing same commodity / no issue of exploitation
-
Non issue - collective experience aim
-
Borders
-
Not anything right now, all is contextual
-
Privacy
-
Health
-
Secrecy
-
Very relative. Different today than tomorrow, now healthy later
maybe not
-
Informed consent
-
Do not want life sustained under adverse conditions
-
Rights over information
-
Short term things - far
-
Statistical things - less so
-
Long term - ? Linked to insensitive, not much for fun if out come
important may do. E.g. kidney offering, augment my capabilities
-
Right for consent - informed, invasive
-
Rights over representation
-
Rights over genetic information specific to me
-
Rights over myself
-
Use of my body beyond death
-
No cosmetic surgery
-
Implants aiding memory and downloadable thought into text
-
Ownership of own DNA and worldwide
-
Knowledge / Use of body data - consent
-
Diversity and non- 'normal' - difference = Priority
-
Only as far as necessary - body not end in itself
-
Control of anonymity - options
-
DNA information being used - anonymous
-
Skin is important - like boundary / control as to what crosses
threshold
-
Happy with senses as they are
-
Willing to donate body after death and consent as to how
-
Living donor under certain circumstances
-
Context dependant augmentation
-
Retain ownership over relevant elements of my DNA
-
DNR
-
Assisted euthanasia
-
No where I would not go without my body
-
Access to information without it
-
Things that affect my personality
-
Right to say yes
-
Right to say no
-
Right not to be cloned
-
Right to give agency to someone else
-
No distance at all
-
Appearance / disappearance - 'gone'
-
Intimacy - maintained
-
Silence / calm
-
Maintaining coherent
-
All the way
-
Test out brain much as possible
-
To know about myself / need to be creatively active - extension
of learning
-
Right to remain a human being - breathe social ecosystem - right
to remain and play
-
Choice / decide when I do not want to be exploited, when I have
had enough
-
Use of physical body after my death
-
Totally dependant on the situation
-
Minefield rights - need more information
-
Right to die, to non participation, to silence / privacy
-
Donate body after death
-
Stay natural - removable enhancements (basic)
-
Never say never
-
Stay natural / brain augmentation
-
Oh shit! (1000's of rights)
|
|